Congress Passes ACT For ALS Bill

As noted before, Rebel, real name Tanea Brooks, was diagnosed with terminal ALS (amyotrophic lateral sclerosis) this past May. Rebel became an ambassador for the I AM ALS organization this past June. Rebel revealed earlier this month that the Accelerating Access to Critical Therapies for ALS Act, also known as the ACT for ALS, was set to expire on September 30 unless Congress reauthorizes it and Congress was attempting to delay a final decision until the end of 2026. Rebel had also urged fans and the public to sign a petition to protect the bill and renew it for ALS research and treatment access for those suffering from the disease.

The I AM ALS organization announced earlier today on Instagram that Congress had passed the ACT for ALS bill with one day to spare before it would have expired.

“ACT for ALS passed—with one day to spare!

Thanks to the I AM ALS community’s leadership and relentless advocacy, ACT for ALS passed Congress by unanimous consent yesterday.

This bill would have expired tomorrow if not for your emails, calls, meetings with your legislators, petition signatures, and consistent demands to renew this critical ALS legislation.

THANK YOU for securing this win for the ALS community. Now, please join us in thanking our ALS congressional champions for making this possible: bit.ly/A4A-TY

Want to keep powering this historic ALS advocacy work? Give today: bit.ly/giveALS”

View this post on Instagram

A post shared by I AM ALS (@iamalsorg)